First I have to say I tried to call medical to tell them I have further info about my conditon and she told me she didnt care they denied my case .

I retained a lawyer.

I have further medical info but I am being brief in case someone work reads this. Lets just say that based on my conversatios with several doctors and lawyers it does not look good for my employer. They really should have tried to work with me harder. The couple of lawyers were salivating and looking for lots of money and damages almost seemed to be salavating. Actually it was kind of creepy. I hate lawyers and they saw easy money and a big huge pay out. Honestly that is still not the way I want to go. I still want them to just let me to work from home. I just want them to do the right thing. If they wont, though, I will do what I have to to pay the mortgage. Plus, I am starting to become frustrated and feeling rather betrayed.

Diagnosis 1

Cervical Dystonia Diagnosis
I am waiting for approval to get botox injections into the back of my neck or spine.

I have been getting much sicker lately and have been home all week very sick. Mom had to take me to the appointment. The neurologist noticed mom had dystonia of her eye. she said it was very rare but it ran in families. She started doing some strange tests, and found out I have cervical dystonia.

hhttp://www.ninds.nih.gov/disorders/dystonias/detail_dystonias.htm



They have to get approval from both the health insurance company AND the RX company. This will be a life time this. They may or may not have been causing the migraine, but it might help. The neurologist just happened to notice I had it during my examination. She is a damned good doctor.

She also is not comfortable with the diagnosis so for and is trying to get approval for an MRA. This will be interesting because I am allergic highly - it put my into shock last time, to the IVP dye the use, but she says they can work with epinephrine and other things. She thinks it is worth it to put the medical test people through the work to have it done. She said it will take longer to schedule it because they will want the specialists and other folks there for the MRA.


Diagnosis 2


Parathyroid disease. This is genetic, so mum had hers tested, and she has it to. Hers is not as advanced. We will both have the parathyroid
biopsies.

for really boring links
http://parathyroid.com/

http://www.endocrineweb.com/parathyroid.html

http://www.endocrineweb.com/parathyroid.html

http://www.cornellsurgery.org/patients/health/parathyroid-disease.html

We are extremely happy to report that today the US Senate unanimously
passed the Americans with Disabilities Act Amendments Act.

The bill corrects court decisions which claims that a person with a
chronic condition cannot utilize the ADA as a defense
when one loses his or her job because of their condition.

The House passed a nearly-identical version of the bill on June 25,
2008. The House must now pass the Senate version of the bill before
it is sent to President Bush for his signature.

"I am pleased that the Senate has...passed the ADA Amendments
Act," said House Majority Leader Steny Hoyer. "This bill
will once again make America a world leader on a central test of human
rights. I expect the House to pass this bill next week, and that the
President will sign it."

I have the paperwork requesting i work for home for 4-6 weeks while I get used to the side effects from topamax. I am very nervous about filling out the paperwork. If I put in something wrong, I may get denied.


It asks do you believe it to be permenant or temporary. Well the condition is permenant, but who knows about what will be permenant or temporary. If it is temporary will they decline me? If it is permenant will they decline me? This is all very scary and confusing.


It is hard when people do not understand that when my husband accidently turned on the kitchen light when I was in there, I became so ill, I vomited and still sick this morning. You just can't explain this type of light sensitivity to someone who has not experienced it. I am really afriad they will try to adjust one or two lights above me deskt. This does not work for me. I can't walk through walmart without getting sick even with a hat, scarf and sunglasses to filter out the fourescent light. I will have to walkt to the bathroom. The break room? The cafeteria? The store? The credit union? They are supposed to make these accesible to folks with disabilities, so I guess this means replacing all these lights and the walkways in between, right? Walk from the dooor to my desk? Go from meetings from my desk. They have almost two square miles of lights - it is not affordable to repace all the bulbs. I think working from home for a couple of weeks or a month is a more reasonable option for now.